Monday, November 28, 2016

Chemo # 2 and a new do

Well jeez I didn't think I would be gone for so long.  I have a lot to catch you up on.   I had my second treatment on Nov. 16.  I was optimistic since the first one seemed to go so well.  I even drove myself because of a schedule mix up.  I saw the doctor before the treatment and since things went well and the only real side effect besides being tired was the rash, she cut back on the steroid (it caused the rash).  The treatment itself was just like the first.  I felt pretty good when I left.  All was good until it was time for bed and then I felt woozy.  I spent some time on the bathroom floor.  I never got sick, but sure felt like it.  

This was getting to be normal and not fun!
Thursday morning was not too bad.  I picked my uncle up from the airport at 10am.  We came back to my apartment, I worked the rest of the day.  Meanwhile, my hair had really started to fall out.  Some of my guy friends had already planned to come over to shave it so it worked out my uncle was there.  Somehow he was nominated to do the shaving.  We got pizza and had lots of laughs as my uncle went to work.  I kept hoping my hair wouldn't fall out and I would be spared for some reason.  I had just gotten good at making the short hair look good.  But the bald head isn't so bad.

Head shave in progress (stolen from Snapchat)
Things really went down hill on Friday.  I felt so nauseous but slept a lot so that helped some.  You don't feel sick when you are sleeping.  I took 2, 3 hour long naps during the day.  Everything tasted so bad, even water.  I had a hard time eating or drinking anything.  I also had a metal smell that was like stuck in my nose.  I couldn't get rid of it.  I have read that some people taste the metal and others smell it.  My nose is like super sniffer, still very sensitive to all smells.  I felt bad for my uncle, Saturday and Sunday were very much like Friday.  We were set to fly back east on Tuesday for Thanksgiving.  I know he was getting nervous about the flight.

The after shot with some friends

Monday morning I emailed my nurse and told her how crappy I was feeling and that I hadn't been able to eat or drink much.  She told me to come that afternoon to get some IV fluids.  So my uncle took me over to the hospital where I got fluids and some meds.  I had lost 4 lbs since the treatment less then a week before.  I came home and went back to sleep.  I woke up Tuesday morning feeling better but still not great.  We were able to get to the airport and the flight wasn't terrible.  We even got upgraded to business class when we requested to have seats next to one another since our tickets were booked at different times.  

Flying in a mask is so much fun!
My trip back to PA and Thanksgiving will be another post - tomorrow or the next day I promise.  Mom is coming this week just in case the treatment on Wednesday goes like the last.  And it's starting to look like Christmas around here :)

Tuesday, November 15, 2016

Pineapples!

When I was diagnosed with breast cancer, someone along the way suggested a photo shoot to “document” my OG tatas. I talked about it with my mom and she thought it was a great idea (I was a little surprised). I found a photographer through google and went back and forth with her for a bit. I needed a second biopsy and wanted those incisions to heal before doing a shoot so they didn’t stand out too much. I also went back to PA to see my family before surgery. By the time I was ready to schedule, the original photographer was booked. I asked her if she knew anyone else that may be able to help me, that’s how I found Adena! Check out her full site {here}




I think our first real conversation was on a Thursday and my shoot would be the following day. Most girls plan for months for this. Several shopping trips to find the perfect outfits are typical. I had 24 hours. I threw a bunch of different things in a bag and made it pit stop at the grocery store for some pineapples. I showed up on Friday excited for Adena to work her magic!



I couldn’t be happier with how this all worked out. Looking back I think it was meant to be that the other photographer was booked. Sometimes when you meet someone, you just click. I know that sounds so cliche but it is so true. Maybe it is because this shoot was so much more to me. I don’t know. After our first conversation, I knew things would be just perfect. I felt like Adena and I had known each other forever. I wasn’t nervous at all but so excited for this part of my story. She has given me something no one else could. This is a piece of me that I will never get back, but it's not completely lost. This is certainly better then the few iPhone pics I took along the way.



Having been through the shoot, I think this is something every girl should do at least once in her life. And if you find yourself in this crummy cancer situation, like me, I would say this is a must. I mean it. I felt like a million bucks when I left. The hair and makeup alone is a mini pamper session. Let alone the actual shoot. So if you are reading this and you know someone going through this, maybe give them the idea. This will for sure be my best memory of my breast cancer journey.










Chemo #2 is tomorrow...

Saturday, November 12, 2016

Lately

Thursday night I went to see Jersey Boys, the musical, with some friends.  It was the first time I left the house for more then 30 minutes in more then a week!  My guy friends wanted to do something and were so thoughtful knowing I can't do much.  We had a blast and they were so entertaining, singing and dancing along in their seats.  If you haven't seen it, you should.  It was fantastic.


A few things to catch up on.  I did cut my hair - 13 inches to be exact.  I wanted to be able to donate it before I started losing it.  My salon working with a charity  - Kids with Hair Loss.  All the wigs are given to children losing hair for one reason or another.  I learned that Locks for Love sells the wigs they make with donated hair...BOOO.  It took me a little to get used to it, but I am liking the shorter hair.  This is good since it will be a long time before I have long hair again :)  The doctor thinks it should start to go this week.  The boys are on standby with the clippers to shave it when it's time.

There goes the ponytail

Best I could do for before and after
In other news, after all the shots and medicines, the fertility folks were able to get 12 eggs to keep on ice for when I am ready.  That's right - a whole dozen eggs :)  That should be more then enough for me.  But I am thankful I was able to do it.  I will have to continue to fight with insurance to see if I can get it all covered.  It wasn't cheap - but at the same time, being able to have babies in the future is priceless.  


My uncle is coming to stay with me this week for a few days.  Chemo #2 is on Wednesday and he gets here Thursday.  We are going to take a drive to Rocky Mountain National Park over the weekend.  It's still 70 degrees during the day.  Where is winter!?!  Then I will fly home with him to spend Thanksgiving with my family.  Almost the entire family will be at my aunts so it will be nice to see everyone.  I come home for a few weeks and will head back for my sister's wedding and Christmas.  

My uncle and I when we met at the gas station in NE.  He was driving CO -> PA and I was going PA -> CO!
Sorry this post wasn't too exciting.  Life on the couch just doesn't give me much to talk about.  Yay for Netflix! 


Sunday, November 6, 2016

Chemo #1

Sorry for the radio silence over here.  I had my first Chemo treatment on Monday the 31st.  I also went back to work this week.  Between the 2 I was sleeping a lot this week.

My port in action

My first treatment wasn't bad, all things considered.  The nurses were fantastic.  Everyone took their time explaining what was happening.  The port was great.  They used a numbing spray on the area so I didn't feel a thing.  I got 2 different kinds anti-nausea medicine, and a steroid before the 2 different chemo drugs.   My friend, Erica, went with me for this one.  We were there about 3 hours total.  Not too bad at all.  I met with a nutritionist while I was there.  She gave me some tips on managing my diet to help with the side effects.  I felt good the rest of the day Monday.

Julie my nurse all dressed up for halloween
Tuesday was my first day back to work.  I went to a meeting and got to see a good group of people. They were happy to have me back.  And didn't mind that I passed around Purell to help keep me healthy.  After the meeting I had to go back to the infusion center and get a shot of Nulasta.  This helps with the white blood cells.  It also made me very achy in my bones, but that is normal.

Back to work outfit
The rest of the week was just work and sleep.  I am happy I haven't had the bad nausea that they have talked about and hope it stays that way.  I have just been extremely tired.  Friday night I used instacart.com and had some groceries delivered.  It was so easy, I will do that again for sure.  I forgot a few things and did go to Target yesterday.  After 25 min, I was ready to come home.  I just have to get used to the fact that things will be different these next few months.  I am hoping that I feel better and have more energy next week in my off week.  

This cutie was parked next to me at Target
In addition to being tired, I have noticed that some smells really bother me now.  The soap I use to wash my hands has a lavender sent and on Tuesday I had to rewash them because it was just too much.  I went through a few different soaps and the milk & honey bothered me the least.  Things also taste different.  Even plain water has a yucky tastes.  I have been drinking mostly apple juice, 7up and smoothies.  The taste and smell changes are normal and could even change again as I go on.  Something that I like today may taste horrible tomorrow.  It's all a learning experience!

All the soaps!